UK clinical information on PPS

Map of Medicine
The Map of Medicine is a central NHS repository of evidence-based pathways. Two entries relate to PPS: Map of Medicine: Post Polio Syndrome (PPS) – suspected Map of Medicine: Post Polio Syndrome (PPS) – rehabilitation and management

The Scottish Medical and Scientific Advisory Committee
This committee set up a working groups and produced a broad report on PPS SMASAC Working Group. (2011). Post Polio Syndrome/Late Effects of Polio and NHS Choices
Short summaries are available at –

European guidelines
European Federation of Neurological Societies (EFNS)

An EFNS task force reviewed the evidence for therapeutic interventions for PPS and produced clinical guidelines in 2006. An update was published in the European Handbook of Neurological Management in 2011

EFNS guideline on diagnosis and management of Post Polio Syndrome. Report of an EFNS task force. [Evaluation Studies]. European Journal of Neurology, 2006, 13(8), 795-801

International clinical information

Cochrane Collaboration
The evidence for treatment of PPS was reviewed in 2011 and updated in 2015 Treatment for Post Polio Syndrome (Review). Cochrane Database of Systematic Reviews issue 5 Art. No.: CD007818. D. doi: 10.1002/14651858. CD007818.pub3.2015

Post Polio Syndrome: Management and Treatment in Primary Care. Ireland: Post Polio Support Group, (2007)

MANAGING MUSCLES AND MOBILITY: Clinical Practice For Health Professionals. Polio Australia Incorporated. (2014)

The Late Effects of Polio: Introduction to Clinical Practice. Polio Australia Incorporated. (2012).

The Late Effects of Polio: Information for General Practitioners. Queensland Health, Peters, C., & Lynch, M. (2001)

Post Polio Health International has online resources for health professionals at

Clinical reference books
Silver, J. K., & Gawne, A. C. (2004). Post Polio Syndrome. Philadelphia: Hanley and Belfus – Written by international experts, this book covers the features, diagnosis and management of PPS with evidence-based reviews of therapies

Other relevant UK clinical guidelines
NICE (2007) CG53: Chronic fatigue syndrome/ myalgic encephalomyelitis (or encephalopathy)
NICE. (2012). Clinical Guideline 146: Osteoporosis: assessing the risk of fragility fracture
NICE. (2014). CG173: Neuropathic pain – pharmacological management
NICE. (2013). CG161: Falls – Assessment and prevention of falls in older people
Bott, J., Blumenthal, S., Buxton, M., Ellum, S., Falconer, C., Garrod, R., . . . J., W. (2009). ACPRC/BTS Guidelines for the physiotherapy management of the adult, medical, spontaneously breathing patient Thorax, 64, i1-i51

Patient information

Lane Fox Respiratory Unit
The specialist clinic at St. Thomas’ Hospital London has produced a patient advice booklet Lane Fox Unit. (2015). Post Polio Syndrome – advice on the management of your symptoms. Guy’s and St Thomas’ NHS Foundation Trust

Relevant British Polio Fellowship documents

The British Polio Fellowship produces information and factsheets for Polio survivors in the UK :

Post Polio Syndrome: A practical guide to understanding and living with the condition, SS11, 10/09
Pacing for Activity and Exercise, SS07, 11/07
Pain and How to Manage it: A Guide for People with Polio and Post Polio Syndrome (PPS) Swallowing problems: A guide for people with Polio or Post Polio Syndrome (PPS), SS14 03/13
PPS factsheets covering healthy eating, cold intolerance, dental care and a hospital pack

Books for Polio survivors
Managing Post Polio: A guide to living and Aging Well with Post Polio Syndrome, Lauro S. Halstead (editor), 2006, NRH press, Washington

Post Polio Syndrome: A guide for Polio survivors and their families, Julie K. Silver, 2001, Yale University Press, New Haven and London

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Healthcare resources