WHAT IS POST POLIO SYNDROME
Post Polio Syndrome is a poorly understood condition that can affect people who have had polio in the past.
Polio is a viral infection that used to be common in the UK, but is now rare.
Most people who had Polio would have fought off the infection without even realising they were infected.
Some people with Polio would have had paralysis, muscle weakness and shrinking of the muscles. But usually, these problems would have either gone away over the following weeks or months, or remained the same for years afterwards.
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Post Polio Syndrome is where some of these symptoms return or get worse many years or decades after the original polio infection.
SYMPTOMS OF POST POLIO SYNDROME
Post Polio Syndrome can include a wide range of symptoms that develop gradually over time, including:
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persistent fatigue (extreme tiredness)
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muscle weakness
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shrinking muscles
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muscle and joint pain
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The condition can have a significant impact on everyday life, making it very difficult to get around and carry out certain tasks and activities. The symptoms tend to get gradually worse over many years, but this happens very slowly and treatment may help slow it down further.
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Post Polio Syndrome is rarely life-threatening, although some people develop breathing and swallowing difficulties that can lead to serious problems, such as chest infections.
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WHO'S AFFECTED
Post Polio Syndrome only affects people who've had polio. It usually develops 15 to 40 years after the infection.
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The condition has become more common in the UK in recent years, because of the high number of Polio cases that occurred during the 1940s and 1950s, before routine vaccination was introduced. It's estimated that there are around 120,000 people living in the UK who survived Polio when they were younger. Some of these have, or will develop, Post Polio Syndrome.
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It's not known exactly how many Polio survivors are or will be affected by Post Polio Syndrome. Estimates vary from as low as 15% to as high as 80%.
WHAT CAUSES POST-POLIO SYNDROME?
The exact cause of post Polio Syndrome is unclear. It's not known whether anything can be done to prevent it.
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The leading theory is that it's the result of the gradual deterioration of nerve cells in the spinal cord (motor neurones) that were damaged by the Polio virus. This would explain why the condition can take years to appear.
Post Polio Syndrome isn't contagious. The theory that the Polio virus may lie dormant in your body, causing Post Polio Syndrome when it becomes reactivated at a later stage, has been disproven.
It's not clear why only some people who've had polio develop Post Polio Syndrome. Those who had severe Polio when they were younger may be more likely to develop the condition.
Contacts us: 0800 043 1935
Email us: info@britishpolio.org.uk
HEATING GRANT
The British Polio Fellowship provides grants to support members who historically have not received the governments Winter Fuel Allowance (WFA) due to the age criteria. Unfortunately due to the late changes to the government scheme this year the Fellowship has made the hard decision to once again only provide grants to those who are not eligible by age due to our funding constraints.
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We are currently evaluating how best to deliver to grant next year to best ensure that all polio survivors struggling with cold intolerance this winter get the support they need. In the meantime we will continue to lobby the government along with other organisations to ensure anybody with a long term health condition such Polio/LEOP or PPS should be eligible to receive the WFA.
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If you are struggling and previously received the WFA and now no longer do please get in contact with our Support Service team who will be able to help you apply for and access support from other organisations and government bodies.
If you were born after 23rd September 1958 and would like to apply for our heating grant please complete the form below.
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HEATING GRANT APPLICATION FORM​
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Please send applications via email to:
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or by post to
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The British Polio Fellowship
CP House
Otterspool Way
Watford
WD25 8HR
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PLEASE SUBMIT ALL GRANT APPLICATIONS BY 4th DECEMBER 2024