A new report has been launched this week by the Neurological Alliance following a survey which The British Polio Fellowship encouraged members to take part in. The report, entitled ‘Is localism working for people with neurological conditions?’ has revealed that the localised health and care system is failing to engage local people.
The survey which covered charity staff, volunteers and people affected by neurological conditions and their carers reveals that many people feel local influencing has become more difficult since the 2012-2013 NHS reforms.
The survey found amongst other things that:
- 47% of people feel that local influencing has become more challenging since the changes to the health and social care system came into force, while 9% feel it has become easier.
- 59% of campaigners have no engagement with CCGs, while 63% have no engagement with HWBs
- Awareness of local structures such as HWBs, local Healthwatch and Strategic Clinical Networks (SCNs) remains low across the country.
The report makes a range of recommendations to improve engagement with the reformed health and care system. Among other recommendations, the report:
- calls on NHS England to develop support, tools and resources to make the localism agenda work for people affected by neurological conditions, including through their representatives in the voluntary sector
- calls on Public Health England to continue to develop the data available on neurological conditions, services and outcomes through the Neurology Intelligence Network and ensure this is linked to the activities of the Neurosciences Specialised Commissioning Clinical Reference Group and Strategic Clinical Networks.
- calls on local commissioners to appoint a neurological conditions lead and conduct a neurological Joint Strategic Needs Assessment
- calls on neurological charities to sign a pledge for working pan-neurologically at the local level
For those wanting to read the full report from the Neurological Alliance, they can do so by clicking this link.