RESULT Study (Review of Epidemiology and Service Use in Rare Long Term Neurological Conditions)
Sonal Shah, University of Birmingham
This study aims to evaluate the services provided for people with rare long term neurological conditions, including Post Polio Syndrome. It is funded by the Department of Health. A few years ago the Department of Health published the National Service Framework for long-term neurological conditions and this highlighted the need for quality standards in providing care and access to services. However, there is little accurate and reliable information about the views of service users and carers on the services currently provided. Without this information it is difficult for the service providers to make improvements. Therefore, the aim of this study is to ask people with Post Polio Syndrome for their views and experiences of health and social care services, and identify good practice as well as any shortcomings or gaps in service provision. We will present this information to policy makers and service providers and feedback to service users and health professionals.
As part of the study we will be asking people with Post Polio Syndrome to complete a questionnaire about your experiences and views of health and social care. The questionnaire will be available from June 2010 and should take approximately 45 minutes to complete. The questionnaire will be available by post, online (http://www.haps.bham.ac.uk/primarycare/ccd/neuro/result.shtml), email, or telephone and is available in a number of languages.
If you are interested in taking part in this study, or to find out more information, please contact Sonal Shah (Address: Primary Care Clinical Sciences, School of Health and Population Sciences, University of Birmingham, Edgbaston B15 2TT Telephone: 0121 414 8585 Email:firstname.lastname@example.org)
If you would like some support to complete the questionnaire, a carer can help you with it, or you can contact Sonal Shah who will be happy to assist.
Alternatively, if you live within reasonable travelling distance of the University of Birmingham you can opt to have a one-to-one interview at a time and location that is convenient for you.