THE BRITISH POLIO FELLOWSHIP CALLS OUT FOR PARTICIPANTS
FOR NATIONAL RESEARCH PROJECT
1 June 2011 – A leading UK charity is calling out for people across the UK to help out with a healthcare research project into fatigue and quality of life in the over 50s.
The British Polio Fellowship has partnered with the Walton Centre for Neurology and Neurosurgery in Liverpool to carry out the research study looking into how day-to-day life is affected by those living with the effects of Polio and Post Polio Syndrome compared to those without the illness.
More than 200 volunteers who contracted Polio earlier in their lives have already completed the questionnaire and now the team is looking for volunteers who have not had Polio to come forward and take part to provide the comparative analysis.
Prof. Carolyn Young, consultant neurologist at the Walton Centre, commented: “Post Polio Syndrome is a neurological condition which can occur in people who had Polio earlier in their lives. It is not widely recognised and, as it can cause muscle weakness and a reduction in stamina, it is often mistaken for general fatigue.
“We’re carrying out this project to determine how people’s fatigue and quality of life can change for those with Post Polio Syndrome compared to those without, in order to help better treat the condition.”
Those taking part in the research project will be sent a questionnaire pack which takes approx. 10 minutes to complete. Anyone over the age of 50 and who has not contracted Polio can take part, irrespective of any other health conditions they may be experiencing.
Pam Jones, chair of the British Polio Fellowship, said: “We believe that 55 per cent of GPs are unable to diagnose the debilitating effects of PPS even though it affects an estimated 100,000 people in the UK, and so the results of this research project are vital to us.
“There are thousands of people whose lives have been affected by Polio – whether it’s through friends and family or personal experience – and we’re looking for those people to come forward and help us with our work to improve diagnosis and treatment of PPS.”
The results of the research project are expected to be announced in the summer and should provide the British Polio Fellowship with valuable information to present to medical professionals in order to improve the diagnosis of PPS.
The British Polio Fellowship is the UK’s leading charity dedicated to helping, supporting and empowering those in the UK living with the effects of Polio and PPS. It has 10,000 members from across the UK, many of whom are living with the effects of Polio or PPS or know someone close to them who has been affected.
To take part in the British Polio Fellowship and Walton Centre for Neurology and Neurosurgery research project call 0151 529 8004 or email email@example.com. If you would like further information about the British Polio Fellowship, or would like to make a donation, please visit www.britishpolio.org.uk.
For further information, please contact:
BCS Public Relations
Tel: 0115 9486901
About the British Polio Fellowship
A Registered charity in England and Wales 1108335, and in Scotland – SCO38863
The British Polio Fellowship seeks to empower and support all people in the UK living with the effects of Polio and Post Polio Syndrome by:
- actively campaigning in support of their rights and needs and those of their carers
- providing information, advocacy, welfare and support to enable people to live full independent and integrated lives and being the first resource on Polio and Post Polio Syndrome.
- supporting a Regional / Branch / Group structure that enables mutual support amongst members to be carried out in a caring and inclusive environment.
- raising the profile of The British Polio Fellowship to enhance its effectiveness and to seek out all those who may benefit from our services.
- developing worldwide alliances with other Polio and Post Polio groups for the mutual benefit of all its members.
The British Polio Fellowship is a charitable organisation that does not receive any government funding. It relies entirely on membership fees, donations and funding activities to continue providing these services.
Membership of the British Polio Fellowship is only £25.00 for life. Members benefit from a free support and information helpline, holiday, heating and welfare grants, an information library, the bi-monthly Bulletin magazine and a newtwork of Branches and Groups for support and social contacts.
Post Polio Syndrome is classified (G14) by the World Health Organisation (WHO) as a disease of the central nervous system that is “an irreversible and incurable clinical situation in relation to the progressive dysfunction of the motor units.”