New research conducted by YouGov reveals that only 7 per cent of Brits are aware of the neurological condition Post Polio Syndrome (PPS), highlighting an urgent need for more support for PPS sufferers from the public and the medical community – according to the national charity, The British Polio Fellowship. Out of 2,034 people polled nationally, PPS achieved the lowest awareness rating by some distance, when compared with other neurological conditions.
The British Polio Fellowship, a charity which helps and supports those in the UK living with the late effects of Polio and Post Polio Syndrome (PPS), says these results show how the Polio survivors’ community in the UK are potentially a forgotten and neglected group, who get much less support than the scale of the condition justifies.
“The research results are shocking,” said Ted Hill MBE, CEO of The British Polio Fellowship. “It’s confirmed what we suspected, that unfortunately the public has extremely little awareness of Post Polio Syndrome. PPS Day on 22 October is being held at The Welsh Assembly, one of the major political hubs in Britain, making it the perfect time to explain what PPS is, and how people can learn more about it and help our charity and its members across the land.” Tellingly, in contrast to only 7 per cent of respondents saying they had heard of PPS, 86 per cent of respondents said they had heard of Parkinson’s disease, with 83 per cent saying they had heard of Motor neurone disease. For Ted, and indeed The British Polio Fellowship, the frustration comes from the fact that PPS affects an estimated 120,000 people in the UK, a figure believed to be similar to the number of people suffering from Parkinson’s or Motor neurone disease.
“PPS is believed to affect the same number of people as some other serious neurological conditions, so it surely deserves the same attention from the medical profession and the public,” added Ted. “The work we do aims to help those who live with the late effects of Polio and PPS by providing information and integrating them into a community with welfare resources and support from other members. We don’t receive any government funding and we desperately need funds to conduct medical research into PPS, which would help our members better manage the condition in later life,” concluded Ted.