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WHAT IS POST POLIO SYNDROME

Post Polio Syndrome is a poorly understood condition that can affect people who have had polio in the past.

Polio is a viral infection that used to be common in the UK, but is now rare.

Most people who had Polio would have fought off the infection without even realising they were infected.

Some people with Polio would have had paralysis, muscle weakness and shrinking of the muscles. But usually, these problems would have either gone away over the following weeks or months, or remained the same for years afterwards.

Post Polio Syndrome is where some of these symptoms return or get worse many years or decades after the original polio infection.

SYMPTOMS OF POST POLIO SYNDROME

Post Polio Syndrome can include a wide range of symptoms that develop gradually over time, including:

persistent fatigue (extreme tiredness)
muscle weakness
shrinking muscles
muscle and joint pain
sleep apnoea

The condition can have a significant impact on everyday life, making it very difficult to get around and carry out certain tasks and activities. The symptoms tend to get gradually worse over many years, but this happens very slowly and treatment may help slow it down further.

Post Polio Syndrome is rarely life-threatening, although some people develop breathing and swallowing difficulties that can lead to serious problems, such as chest infections.

WHO'S AFFECTED

Post Polio Syndrome only affects people who've had polio. It usually develops 15 to 40 years after the infection.

The condition has become more common in the UK in recent years, because of the high number of Polio cases that occurred during the 1940s and 1950s, before routine vaccination was introduced. It's estimated that there are around 120,000 people living in the UK who survived Polio when they were younger. Some of these have, or will develop, Post Polio Syndrome.

It's not known exactly how many Polio survivors are or will be affected by Post Polio Syndrome. Estimates vary from as low as 15% to as high as 80%.

WHAT CAUSES POST-POLIO SYNDROME?

The exact cause of post Polio Syndrome is unclear. It's not known whether anything can be done to prevent it.

The leading theory is that it's the result of the gradual deterioration of nerve cells in the spinal cord (motor neurones) that were damaged by the Polio virus. This would explain why the condition can take years to appear.

Post Polio Syndrome isn't contagious. The theory that the Polio virus may lie dormant in your body, causing Post Polio Syndrome when it becomes reactivated at a later stage, has been disproven.

It's not clear why only some people who've had polio develop Post Polio Syndrome. Those who had severe Polio when they were younger may be more likely to develop the condition.

Contacts us: 0800 043 1935
Email us: info@britishpolio.org.uk

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The British Polio Fellowship

Feb 18, 20221 min read

Apply for a reserved parking bay

Did you know you could be eligible to apply for a reserved parking bay outside or near to your home?

Thanks to The Equality Act 2010, local councils are providing disabled residents with an opportunity to apply to have an advisory disabled parking bay placed directly outside, or near to their home.

To be eligible to apply you will need to:

Hold a current Blue Badge.
Live at the address where the parking bay is needed.
Have no off-street parking nearby suitable for you, such as a driveway or garage.
Frequently use the vehicle that will be parked in the bay.
Experience difficulties in parking near to your home.

The name of the form and the application process will vary dependant on where you live. Nevertheless, you will need your Blue Badge number and the date of its expiration in order to complete the form.

Below is suggested advice on the name of the form and who to contact. You should also make sure to check their specific eligibility criteria and application process.

England: go to your local or borough council website and search for Disabled Parking Bay

Wales: go to your local or borough council website and search for Disabled Parking Bay

Scotland: go directly to https://www.mygov.scot/disabled-parking-space (Disabled Parking Space)

Northern Ireland: go directly to https://www.nidirect.gov.uk/articles/accessible-parking-bays (Accessible Parking Bay)

If you do not have access to a computer you are advised to phone your local council for advice.

Do let us know your experiences and hopefully successes!

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