In addition to the information and support we provide over the phone, the Support Services Team also produces a wide range of information leaflets and factsheets that can be sent to you on request. All leaflets and factsheets are free with the exception of Post Polio Syndrome (PPS) : A Practical Guide for which there is a charge of £7.50. Publications can be ordered by contacting our Support Service Team.
To download any of the PDFs to your hard drive (instead of reading them in your web browser), right click on the link and click “Save Target As…”
Post Polio Syndrome: An Introduction
A brief leaflet introducing PPS to people who may not be aware of the condition. Ideal to pass on to family, your busy GP or anyone who wants to know a little about the condition in a quick and easy to read format. You can read this leaflet here
Pain and How to Manage it: A Guide for People with Polio and Post Polio Syndrome (PPS)
This leaflet is for anyone who had Polio or has Post Polio Syndrome (PPS) who would like to learn more about pain and how it may be managed. You can read this leaflet here.
Pacing for Activity and Exercise
This explains the importance of pacing and energy management to avoid a boom and bust cycle of over and under activity and to stay as well as you can. Prepared with the help of the physiotherapists at the Lane Fox Unit, St Thomas’ Hospital, London, this leaflet is really useful for healthcare professionals as well as people with PPS. You can read this leaflet here.
List of healthcare professionals with an interest in Polio or Post Polio Syndrome (PPS)
When a referral is needed do contact us for a list of consultants and other healthcare professionals in your area. Please look at Useful Organisations page to find relevant services here.
Cold Intolerance: A guide for people with Polio or PPS
Cold intolerance is a very common problem for people who have had Polio. This factsheet explains why and makes some suggestions as to how it may be managed. You can read the leaflet here.
Complementary Therapies: A guide for people with Polio or PPS
This factsheet combines advice about finding an appropriately qualified practitioner along with some of the therapies that people with PPS have found most helpful. You can read this leaflet here.
Dental Care: A guide for people with Polio or PPS
Going to the dentist can be more of a problem if you have had Polio. This factsheet has information about looking after your teeth, access considerations and dental anesthesia. You can read this leaflet here.
What you should know about your medication: A guide for people with Polio or PPS
Some types of medication can cause difficulties for people with PPS as they can make existing symptoms worse. This factsheet explains a little about the most common groups of medication that may cause problems. You can download this leaflet here.
Going into hospital can be a worrying time. Our Hospital Pack includes advice about planning ahead, questions you may wish to ask at a consultation, a “what you need to know about my condition” form for you to complete for inclusion in your notes, and information about PPS and anesthesia for the healthcare professionals who will be looking after you.
Please call Support Services to acquire a Hospital Pack – call 0800 043 1935 for more information.
Healthy Eating – A guide for people with Polio or Post Polio Syndrome (PPS)
This factsheet explains the importance of a healthy, balanced diet for people with Polio/PPS, and includes advice for weight management and fatigue, eating well on a low income and practical solutions for preparing food. You can read this leaflet here.
Attendance Allowance: A self-help guide to claiming Attendance Allowance for people with Polio or PPS aged 65+
Disability Living Allowance: A self-help guide to claiming Disability Living Allowance for adults with Polio or PPS
These comprehensive factsheets give detailed information on how to claim Attendance Allowance (AA) and Disability Living Allowance (DLA) or apply for an upgrade. If you are a member do give us a call on Freephone 0800 043 1935 to book an appointment with our Disability Benefits Advisor for individual advice on completing the forms. Non-members may be able to get advice from a local advocacy service such as Citizens Advice Bureau, Dial or Age UK.
Disabled Facilities Grants: A self-help guide to disabled facilities grants for people with Polio or PPS
Does your home need adapting so that it can continue to meet your needs? If so you may be eligible for a Disabled Facilities Grant – this factsheet explains more.
Community Care Grants: A guide for people with Polio and PPS
Community Care Grants are available to people receiving certain means-tested benefits and can cover items such as furniture and household equipment – this factsheet explains what items are and are not covered and how to apply.
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