BPF voices heard at RCN Neuroscience Forum Conference

25th June 2026

The British Polio Fellowship (BPF) played an important role at the RCN Neuroscience Forum Conference on Wednesday 24 June 2026, helping ensure that the voices of people living with long-term neurological conditions were heard by healthcare professionals.

Held at the Royal College of Nursing headquarters in London, the conference brought together nurses, healthcare assistants, clinicians, students and patient representatives to discuss care for people living with complex neurological conditions. Sessions focused on six conditions: Post-Polio Syndrome, Multiple Sclerosis, Parkinson’s, Cerebral Palsy, Motor Neurone Disease and headache disorders.

A key theme of the event was understanding life beyond diagnosis. During the session Listening to Lived Experience – What We Would Like Nurses to Know, BPF Trustee and polio survivor Frances Quinn shared her experiences alongside Aaron and Will, who live with Multiple Sclerosis. Their stories gave attendees valuable insight into the daily realities of living with long-term neurological conditions.

BPF also contributed to discussions on policy and advocacy. Chief Executive Kripen Dhrona joined a panel with Georgina Carr, Chief Executive of the Neurological Alliance, to discuss how organisations, policymakers and patient groups can work together to improve services and outcomes for people with neurological conditions.

Kripen Dhrona said: “We were pleased to take part in these important discussions and help raise awareness of the challenges faced by people living with Post-Polio Syndrome, highlighting our Optimal Clinical Pathway for Polio Survivors.”

Through its involvement in both patient experience and policy discussions, BPF helped ensure that the needs of people affected by Post-Polio Syndrome remained a key part of the conversation.

BPF thanks the Royal College of Nursing for the opportunity to contribute and looks forward to continuing these discussions with the nursing community.